The Official Patient's Sourcebook on Lupus (17 page)

Association; produced by Dave Bell Associates; Year: 1974; Format:

Videorecording; Garden Grove, Ca.: Trainex, 1974

·
Lupus erythematosus, collagen-vascular diseases, and eczema.
Source: Dept. of Medicine, Emory University, School of Medicine; Year: 1979;

Format: Videorecording; Atlanta: Emory Medical Television Network:

[for loan and sale by A. W. Calhoun Medical Library, 1979]

·
Lupus-- insights, emotions, encouragements.
Source: written and

produced by William & Estelle Gill, in cooperation with the Lupus

Foundation of America, Inc., Marcy Zitron Chapter, Columbus, Ohio;

Year: 1993; Format: Videorecording; Columbus, Ohio: Production House;

Media, PA: Media Inc., c1993

·
Nephrology.
Source: American Medical Association; Year: 1997; Format: Electronic resource; Newton, MA: SilverPlatter Education, 1997

·
Nephrotic syndrome in chronic nephritis.
Source: Department of Medicine, Emory University, School of Medicine; Year: 1980; Format:

Videorecording; Atlanta: Emory Medical Television Network: [for loan or

sale by A. W. Calhoun Medical Library], 1980

Multimedia 87

·
Nephrotic syndrome.
Source: E. Lovell Becker, Jacob Churg; Year: 1972; Format: Slide; New York: Medcom, c1972

·
Renal biopsy.
Source: Richard R. Lindquist; Year: 1970; Format: Slide;

[New York]: Medcom, c1970

·
Steroids and immunosuppressive drugs in renal disease.
Source: Video Digest, inc; Year: 1972; Format: Motion picture; Cincinnati, Ohio: Video

Digest, c1972

·
Systemic lupus erythematosis.
Source: presented by the Department of Pediatrics, Emory University, School of Medicine; Year: 1984; Format:

Videorecording; Atlanta, Ga.: Emory Medical Television Network, 1984

·
Systemic lupus erythematosus (SLE) : it means some changes.
Source: Biomedical Media Production Unit, the University of Michigan Medical

Center, Office of Educational Resources & Research; Year: 1981; Format:

Videorecording; Ann Arbor, Mich.: University of Michigan, c1981

·
Systemic lupus erythematosus.
Source: Ellen M. Ginzler; Year: 1979; Format: Slide; [New York]: Medcom, c1979

·
Systemic lupus.
Source: produced by Audio Master; Year: 1988; Format: Sound recording; [Atlanta, Ga.]: American Rheumatism Association,

[1988]

·
Treatment of lupus.
Source: presented by the Department of Medicine, Emory University, School of Medicine; Year: 1985; Format:

Videorecording; Atlanta, Ga.: Emory Medical Television Network, 1985

·
Tubulo-interstitial disease.
Source: Harry G. Preuss, George E.

Schreiner; Year: 9999; Format: Slide; [New York]: Medcom, c1980-

·
Voices of lupus.
Source: [presented by] Films for the Humanities & Sciences, the Wolf Pack and the Hospital for Special Surgery; a Harriet

Fier & Stephen Mantell Production; Year: 1992; Format: Videorecording;

Princeton, N.J.: Films for the Humanities & Sciences, c1992

Vocabulary Builder

Dermatology:
A medical specialty concerned with the skin, its structure, functions, diseases, and treatment. [NIH]

Eczema:
A pruritic papulovesicular dermatitis occurring as a reaction to many endogenous and exogenous agents, characterized in the acute stage by

erythema, edema associated with a serous exudate between the cells of the

epidermis (spongiosis) and an inflammatory infiltrate in the dermis, oozing

and vesiculation, and crusting and scaling; and in the more chronic stages by

lichenification or thickening or both, signs of excoriations, and

88 Lupus Nephritis

hyperpigmentation or hypopigmentation or both. Atopic dermatitis is the

most common type of dermatitis. Called also eczematous dermatitis. [EU]

Edema:
Excessive amount of watery fluid accumulated in the intercellular spaces, most commonly present in subcutaneous tissue. [NIH]

Empyema:
Accumulation of pus in a cavity of the body; when used without a descriptive qualifier, it refers to thoracic empyema (q.v.). [EU]

Fistula:
An abnormal passage or communication, usually between two

internal organs, or leading from an internal organ to the surface of the body; frequently designated according to the organs or parts with which it

communicates, as anovaginal, brochocutaneous, hepatopleural,

pulmonoperitoneal, rectovaginal, urethrovaginal, and the like. Such passages

are frequently created experimentally for the purpose of obtaining body

secretions for physiologic study. [EU]

Periodicals and News 89

CHAPTER 8. PERIODICALS AND NEWS ON LUPUS

NEPHRITIS

Overview

Keeping up on the news relating to lupus nephritis can be challenging.

Subscribing to targeted periodicals can be an effective way to stay abreast of recent developments on lupus nephritis. Periodicals include newsletters,

magazines, and academic journals.

In this chapter, we suggest a number of news sources and present various

periodicals that cover lupus nephritis beyond and including those which are

published by patient associations mentioned earlier. We will first focus on

news services, and then on periodicals. News services, press releases, and

newsletters generally use more accessible language, so if you do chose to

subscribe to one of the more technical periodicals, make sure that it uses

language you can easily follow.

News Services & Press Releases

Well before articles show up in newsletters or the popular press, they may

appear in the form of a press release or a public relations announcement.

One of the simplest ways of tracking press releases on lupus nephritis is to

search the news wires. News wires are used by professional journalists, and

have existed since the invention of the telegraph. Today, there are several

major “wires” that are used by companies, universities, and other

organizations to announce new medical breakthroughs. In the following

sample of sources, we will briefly describe how to access each service. These

services only post recent news intended for public viewing.

90 Lupus Nephritis

PR Newswire

Perhaps the broadest of the wires is PR Newswire Association, Inc. To access

this archive, simply go to
http://www.prnewswire.com
. Below the search

box, select the option “The last 30 days.” In the search box, type “lupus

nephritis” or synonyms. The search results are shown by order of relevance.

When reading these press releases, do not forget that the sponsor of the

release may be a company or organization that is trying to sell a particular

product or therapy. Their views, therefore, may be biased.

·
Lupus, Psoriasis and Arthritis Foundation Leaders and Biotechnology

Industry Discuss Ways to Increase Clinical Trial Enrollment at BIO

2002

Summary: San Diego, June 11 /PRNewswire-FirstCall/ -- La Jolla

Pharmaceutical Company (Nasdaq: LJPC) today announced that industry

and leaders of the national lupus, arthritis and psoriasis patient advocacy

organizations will discuss clinical trial enrollment at the Biotechnology

Industry Organization (BIO) 2002 International Conference and

Exhibition in Toronto, Canada this morning at 8:30 a.m.

"The good news is that the biotechnology industry is developing an

unprecedented wave of drug candidates, offering hope of potential new

therapies. Unfortunately, a lack of patients to participate in this growing

number of clinical trials will pose a significant bottleneck to the

availability of these promising drugs," said Steven B. Engle, La Jolla

Pharmaceutical Company's Chairman and CEO. "By working together,

patient advocacy groups, biotechnology companies and others can

educate the public on the critical importance of clinical trial

participation."

"Voluntary health associations bring together patients and companies

seeking to develop new therapies for a range of diseases," said Gail M.

Zimmerman, President and CEO of the National Psoriasis Foundation.

"Through awareness, education and ensuring access to clinical trials, we

can help in the race to provide new treatments to patients who may

otherwise be faced with limited options for care."

The panel will include Ms. Zimmerman; Sandra Claire Raymond,

President and CEO of the Lupus Foundation of America; and Tino J.

Mantella, President and CEO of the Arthritis Foundation. Mr. Engle will

chair the panel. The panel discussion is entitled "Changing the Future of Clinical Trial Recruitment by Building Ties with Patient Advocates."

Periodicals and News 91

La Jolla Pharmaceutical Company is a biotechnology company leading

the development of therapeutics for antibody-mediated autoimmune

diseases afflicting several million people in the United States and Europe.

The Company is conducting a Phase III trial of LJP 394 in patients with

lupus kidney disease, a leading cause of sickness and death in these

patients. The Company is also conducting a Phase I/II trial of LJP 1082

for the treatment of antibody-mediated thrombosis, a condition in which

patients suffer from recurrent stroke, deep-vein thrombosis and other

thrombotic events. The Company's common stock is traded on The

Nasdaq Stock Market under the symbol LJPC. For more information

about the Company, visit our Web site: http://www.ljpc.com . Patients

interested in the Phase III lupus trial may call 1-800-30-LUPUS for

information.

Reuters

The Reuters’ Medical News database can be very useful in exploring news

archives relating to lupus nephritis. While some of the listed articles are free to view, others can be purchased for a nominal fee. To access this archive, go to
http://www.reutershealth.com/frame2/arch.html
and
search by “lupus nephritis” (or synonyms). The following was recently listed in this archive

for lupus nephritis:

·
Oral cyclophosphamide may have advantages in severe lupus nephritis

Source: Reuters Industry Breifing

Date: August 20, 2001

http://www.reuters.gov/archive/2001/08/20/business/links/20010820

clin017.html

·
Lupus nephritis may be mediated by molecular mimicry

Source: Reuters Medical News

Date: May 16, 2001

http://www.reuters.gov/archive/2001/05/16/professional/links/20010

516scie001.html

·
Anti-C1q antibodies are associated with lupus nephritis activity

Source: Reuters Medical News

Date: March 30, 2001

http://www.reuters.gov/archive/2001/03/30/professional/links/20010

330clin003.html

92 Lupus Nephritis

·
Increased risk of lupus nephritis linked to genetic factor in Caucasians
Source: Reuters Medical News

Date: March 13, 2001

http://www.reuters.gov/archive/2001/03/13/professional/links/20010

313clin007.html

·
Experimental agent may prevent flares of lupus nephritis

Source: Reuters Industry Breifing

Date: March 07, 2001

http://www.reuters.gov/archive/2001/03/07/business/links/20010307

drgd002.html

·
Mycophenolate mofetil plus prednisolone effective for lupus nephritis

Source: Reuters Medical News

Date: October 19, 2000

http://www.reuters.gov/archive/2000/10/19/professional/links/20001

019clin014.html

·
Chinese herbal preparation helps woman with lupus nephritis

Source: Reuters Medical News

Date: August 16, 1999

http://www.reuters.gov/archive/1999/08/16/professional/links/19990

816clin007.html

·
Tolerization with autoepitopes slows lupus nephritis in mice

Source: Reuters Medical News

Date: May 18, 1999

http://www.reuters.gov/archive/1999/05/18/professional/links/19990

518scie001.html

·
Compounds That Block DNA Antibodies May Prevent Lupus

Nephritis

Source: Reuters Medical News

Date: November 11, 1996

http://www.reuters.gov/archive/1996/11/11/professional/links/19961

111scie003.html

·
Genetic Risk Factor For Lupus Nephritis Identified

Source: Reuters Medical News

Date: March 06, 1996

http://www.reuters.gov/archive/1996/03/06/professional/links/19960

306clin002.html

Periodicals and News 93

The NIH

Within MEDLINEplus, the NIH has made an agreement with the New York

Times Syndicate, the AP News Service, and Reuters to deliver news that can

be browsed by the public. Search news releases at

http://www.nlm.nih.gov/medlineplus/alphanews_a.html.

MEDLINEplus

allows you to browse across an alphabetical index. Or you can search by date

at
http://www.nlm.nih.gov/medlineplus/newsbydate.html
. Often, news

items are indexed by MEDLINEplus within their search engine.

Business Wire

Business Wire is similar to PR Newswire. To access this archive, simply go to

http://www.businesswire.com
. You can scan the news by industry category or company name.

Internet Wire

Internet Wire is more focused on technology than the other wires. To access

this site, go to
http://www.internetwire.com
and use the “Search Archive”