The Official Patient's Sourcebook on Lupus

THE OFFICIAL

PATIENT’S SOURCEBOOK

on

JAMES N. PARKER, M.D.

AND PHILIP M. PARKER, PH.D., EDITORS

ii

ICON Health Publications

ICON Group International, Inc.

4370 La Jolla Village Drive, 4th Floor

San Diego, CA 92122 USA

Copyright Ó2002 by ICON Group International, Inc.

Copyright Ó2002 by ICON Group International, Inc. All rights reserved. This book is protected by copyright. No part of it may be reproduced, stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording or otherwise, without written permission from the publisher.

Printed in the United States of America.

Last digit indicates print number: 10 9 8 7 6 4 5 3 2 1

Publisher, Health Care: Tiffany LaRochelle

Editor(s): James Parker, M.D., Philip Parker, Ph.D.

Publisher’s note: The ideas, procedures, and suggestions contained in this book are not intended as a substitute for
consultation with your physician. All matters regarding your health require medical supervision.
As new medical or scientific information becomes available from academic and clinical research, recommended treatments and drug therapies may undergo changes. The authors, editors, and publisher have attempted to make the information in this book up to date and accurate in accord with accepted standards at the time of publication. The authors, editors, and publisher are not responsible for errors or omissions or for consequences from application of the book, and make no warranty, expressed or implied, in regard to the contents of this book. Any practice described in this book should be applied by the reader in accordance with professional standards of care used in regard to the unique circumstances that may apply in each situation, in close consultation with a qualified physician. The reader is advised to always check product information (package inserts) for changes and new information regarding dose and contraindications before taking any drug or pharmacological product.

Caution is especially urged when using new or infrequently ordered drugs, herbal remedies, vitamins and supplements, alternative therapies, complementary therapies and medicines, and integrative medical treatments.

Cataloging-in-Publication Data

Parker, James N., 1961-

Parker, Philip M., 1960-

The Official Patient’s Sourcebook on Lupus Nephritis: A Revised and Updated Directory for the Internet Age/James N. Parker and Philip M. Parker, editors

p.

cm.

Includes bibliographical references, glossary and index.

ISBN:

0-597-83224-2

1. Lupus Nephritis-Popular works. I. Title.

iii

Disclaimer

This publication is not intended to be used for the diagnosis or treatment of a health problem or as a substitute for consultation with licensed medical professionals. It is sold with the understanding that the publisher, editors, and authors are not engaging in the rendering of medical, psychological, financial, legal, or other professional services.

References to any entity, product, service, or source of information that may be contained in this publication should not be considered an endorsement, either direct or implied, by the publisher, editors or authors. ICON Group International, Inc., the editors, or the authors are not responsible for the content of any Web pages nor publications referenced in this publication.

Copyright Notice

If a physician wishes to copy limited passages from this sourcebook for patient use, this right is automatically granted without written permission from ICON Group International, Inc. (ICON Group). However, all of ICON Group publications are copyrighted. With exception to the above, copying our publications in whole or in part, for whatever reason, is a violation of copyright laws and can lead to penalties and fines. Should you want to copy tables, graphs or other materials, please contact us to request permission (e-mail: [email protected]). ICON Group often grants permission for very limited reproduction of our publications for internal use, press releases, and academic research. Such reproduction requires confirmed permission from ICON Group International Inc
. The disclaimer above
must accompany all reproductions, in whole or in part, of this sourcebook.

iv

To the healthcare professionals dedicating their time and efforts to the study of lupus nephritis.

The collective knowledge generated from academic and applied research summarized in various references has been critical in the creation of this sourcebook which is best viewed as a comprehensive compilation and collection of information prepared by various official agencies which directly or indirectly are dedicated to lupus nephritis. All of the
Official
Patient’s Sourcebooks
draw from various agencies and institutions associated with the United States Department of Health and Human Services, and in particular, the Office of the Secretary of Health and Human Services (OS), the Administration for Children and Families (ACF), the Administration on Aging (AOA), the Agency for Healthcare Research and Quality (AHRQ), the Agency for Toxic Substances and Disease Registry (ATSDR), the Centers for Disease Control and Prevention (CDC), the Food and Drug Administration (FDA), the Healthcare Financing Administration (HCFA), the Health Resources and Services Administration (HRSA), the Indian Health Service (IHS), the institutions of the National Institutes of Health (NIH), the Program Support Center (PSC), and the Substance Abuse and Mental Health Services Administration (SAMHSA). In addition to these sources,

information gathered from the National Library of Medicine, the United States Patent Office, the European Union, and their related organizations has been invaluable in the creation of this sourcebook. Some of the work represented was financially supported by the Research and Development Committee at INSEAD. This support is gratefully acknowledged. Finally, special thanks are owed to Tiffany LaRochelle for her excellent editorial support.

v

About the Editors

James N. Parker, M.D.

Dr. James N. Parker received his Bachelor of Science degree in Psychobiology from the University of California, Riverside and his M.D. from the University of California, San Diego. In addition to authoring numerous research publications, he has lectured at various academic institutions. Dr. Parker is the medical editor for the
Official Patient’s Sourcebook
series published by ICON Health Publications.

Philip M. Parker, Ph.D.

Philip M. Parker is the Eli Lilly Chair Professor of Innovation, Business and Society at INSEAD (Fontainebleau, France and Singapore). Dr. Parker has also been Professor at the University of California, San Diego and has taught courses at Harvard University, the Hong Kong University of Science and Technology, the Massachusetts Institute of Technology, Stanford University, and UCLA. Dr. Parker is the associate editor for the
Official Patient’s
Sourcebook
series published by ICON Health Publications.

vi

About ICON Health Publications

In addition to lupus nephritis,
Official Patient’s Sourcebooks
are available for the following related topics:

·

The Official Patient's Sourcebook on Childhood Nephrotic Syndrome

·

The Official Patient's Sourcebook on Cystocele

·

The Official Patient's Sourcebook on Glomerular Disease

·

The Official Patient's Sourcebook on Goodpasture Syndrome

·

The Official Patient's Sourcebook on Hematuria

·

The Official Patient's Sourcebook on Hemochromatosis

·

The Official Patient's Sourcebook on Immune Thrombocytopenic Purpura

·

The Official Patient's Sourcebook on Impotence

·

The Official Patient's Sourcebook on Interstitial Cystitis

·

The Official Patient's Sourcebook on Kidney Failure

·

The Official Patient's Sourcebook on Kidney Stones

·

The Official Patient's Sourcebook on Nephrotic Syndrome

·

The Official Patient's Sourcebook on Peyronie

·

The Official Patient's Sourcebook on Polycystic Kidney Disease

·

The Official Patient's Sourcebook on Prostate Enlargement

·

The Official Patient's Sourcebook on Prostatitis

·

The Official Patient's Sourcebook on Proteinuria

·

The Official Patient's Sourcebook on Pyelonephritis

·

The Official Patient's Sourcebook on Renal Osteodystrophy

·

The Official Patient's Sourcebook on Renal Tubular Acidosis

·

The Official Patient's Sourcebook on Simple Kidney Cysts

·

The Official Patient's Sourcebook on Urinary Incontinence

·

The Official Patient's Sourcebook on Urinary Incontinence for Women

·

The Official Patient's Sourcebook on Urinary Tract Infection in Children

·

The Official Patient's Sourcebook on Urinary Tract Infections in Adults

·

The Official Patient's Sourcebook on Vasectomy

·

The Official Patient's Sourcebook on Vesicoureteral Reflux

To discover more about ICON Health Publications, simply check with your preferred online booksellers, including Barnes & Noble.com and Amazon.com which currently carry all of our titles. Or, feel free to contact us directly for bulk purchases or institutional discounts: ICON Group International, Inc.

4370 La Jolla Village Drive, Fourth Floor

San Diego, CA 92122 USA

Fax: 858-546-4341

Web site:
www.icongrouponline.com/health

Contents vii

Table of Contents

INTRODUCTION ................................................................................................................................. 1

Overview ....................................................................................................................................... 1

Organization ................................................................................................................................. 3

Scope.............................................................................................................................................. 3

Moving Forward............................................................................................................................ 4

PART I: THE ESSENTIALS............................................................................................................. 7

CHAPTER 1. THE ESSENTIALS ON LUPUS NEPHRITIS: GUIDELINES................................................. 9

Overview ....................................................................................................................................... 9

What Is Lupus Nephritis? ........................................................................................................... 11

For More Information.................................................................................................................. 11

Additional Information on Lupus Nephritis ............................................................................... 12

More Guideline Sources .............................................................................................................. 13

Vocabulary Builder...................................................................................................................... 17

CHAPTER 2. SEEKING GUIDANCE................................................................................................... 21

Overview ..................................................................................................................................... 21

Associations and Lupus Nephritis............................................................................................... 21

Finding More Associations ......................................................................................................... 22

Finding Doctors........................................................................................................................... 24

Finding a Urologist ..................................................................................................................... 25

Selecting Your Doctor ................................................................................................................. 26

Working with Your Doctor ......................................................................................................... 27

Broader Health-Related Resources .............................................................................................. 28