The Official Patient's Sourcebook on Lupus (2 page)
Read The Official Patient's Sourcebook on Lupus Online
Authors: MD James N. Parker,PH.D Philip M. Parker
CHAPTER 3. CLINICAL TRIALS AND LUPUS NEPHRITIS................ 29
Overview ..................................................................................................................................... 29
Recent Trials on Lupus Nephritis ............................................................................................... 32
Benefits and Risks........................................................................................................................ 36
Keeping Current on Clinical Trials............................................................................................. 39
General References....................................................................................................................... 40
Vocabulary Builder...................................................................................................................... 41
PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL ........................... 43
CHAPTER 4. STUDIES ON LUPUS NEPHRITIS................................................................................... 45
Overview ..................................................................................................................................... 45
The Combined Health Information Database .............................................................................. 45
Federally-Funded Research on Lupus Nephritis ......................................................................... 52
E-Journals: PubMed Central....................................................................................................... 65
The National Library of Medicine: PubMed................................................................................ 66
Vocabulary Builder...................................................................................................................... 67
CHAPTER 5. PATENTS ON LUPUS NEPHRITIS ................................................................................. 73
Overview ..................................................................................................................................... 73
Patents on Lupus Nephritis......................................................................................................... 74
Patent Applications on Lupus Nephritis..................................................................................... 75
Keeping Current .......................................................................................................................... 75
Vocabulary Builder...................................................................................................................... 76
CHAPTER 6. BOOKS ON LUPUS NEPHRITIS..................................................................................... 77
Overview ..................................................................................................................................... 77
Book Summaries: Federal Agencies ............................................................................................. 77
Book Summaries: Online Booksellers .......................................................................................... 79
The National Library of Medicine Book Index............................................................................. 79
viii Contents
Chapters on Lupus Nephritis ...................................................................................................... 81
General Home References ............................................................................................................ 82
Vocabulary Builder...................................................................................................................... 82
CHAPTER 7. MULTIMEDIA ON LUPUS NEPHRITIS .......................................................................... 85
Overview ..................................................................................................................................... 85
Bibliography: Multimedia on Lupus Nephritis ........................................................................... 85
Vocabulary Builder...................................................................................................................... 87
CHAPTER 8. PERIODICALS AND NEWS ON LUPUS NEPHRITIS ....................................................... 89
Overview ..................................................................................................................................... 89
News Services & Press Releases.................................................................................................. 89
Newsletter Articles...................................................................................................................... 94
Academic Periodicals covering Lupus Nephritis......................................................................... 96
Vocabulary Builder...................................................................................................................... 98
CHAPTER 9. PHYSICIAN GUIDELINES AND DATABASES ................................................................ 99
Overview ..................................................................................................................................... 99
NIH Guidelines ........................................................................................................................... 99
NIH Databases .......................................................................................................................... 100
Other Commercial Databases .................................................................................................... 104
The Genome Project and Lupus Nephritis ................................................................................ 104
Specialized References ............................................................................................................... 109
Vocabulary Builder.................................................................................................................... 110
CHAPTER 10. DISSERTATIONS ON LUPUS NEPHRITIS .................................................................. 111
Overview ................................................................................................................................... 111
Dissertations on Lupus Nephritis ............................................................................................. 111
Keeping Current ........................................................................................................................ 112
Vocabulary Builder.................................................................................................................... 112
PART III. APPENDICES .............................................................................................................. 113
APPENDIX A. RESEARCHING YOUR MEDICATIONS ..................................................................... 115
Overview ................................................................................................................................... 115
Your Medications: The Basics ................................................................................................... 116
Learning More about Your Medications ................................................................................... 117
Commercial Databases............................................................................................................... 119
Contraindications and Interactions (Hidden Dangers)............................................................. 120
A Final Warning ....................................................................................................................... 121
General References..................................................................................................................... 122
Vocabulary Builder.................................................................................................................... 123
APPENDIX B. RESEARCHING ALTERNATIVE MEDICINE............................................................... 125
Overview ................................................................................................................................... 125
What Is CAM? .......................................................................................................................... 125
What Are the Domains of Alternative Medicine?..................................................................... 126
Can Alternatives Affect My Treatment?................................................................................... 129
Finding CAM References on Lupus Nephritis.......................................................................... 130
Additional Web Resources......................................................................................................... 134
General References..................................................................................................................... 135
Vocabulary Builder.................................................................................................................... 136
APPENDIX C. RESEARCHING NUTRITION..................................................................................... 137
Overview ................................................................................................................................... 137
Food and Nutrition: General Principles.................................................................................... 138
Finding Studies on Lupus Nephritis......................................................................................... 142
Federal Resources on Nutrition................................................................................................. 145
Additional Web Resources......................................................................................................... 146
Vocabulary Builder.................................................................................................................... 146
APPENDIX D. FINDING MEDICAL LIBRARIES ............................................................................... 149
Contents ix
Overview ................................................................................................................................... 149
Preparation ................................................................................................................................ 149
Finding a Local Medical Library ............................................................................................... 150
Medical Libraries Open to the Public ........................................................................................ 150
APPENDIX E. YOUR RIGHTS AND INSURANCE ............................................................................. 157
Overview ................................................................................................................................... 157
Your Rights as a Patient............................................................................................................ 157
Patient Responsibilities ............................................................................................................. 161
Choosing an Insurance Plan...................................................................................................... 162
Medicare and Medicaid ............................................................................................................. 164
NORD’s Medication Assistance Programs............................................................................... 167
Additional Resources................................................................................................................. 168
Vocabulary Builder.................................................................................................................... 169
ONLINE GLOSSARIES ............................................................................................................... 171
Online Dictionary Directories................................................................................................... 176
LUPUS NEPHRITIS GLOSSARY............................................................................................... 177
General Dictionaries and Glossaries ......................................................................................... 187
INDEX.............................................................................................................................................. 189
INTRODUCTION
Overview
Dr. C. Everett Koop, former U.S. Surgeon General, once said, “The best
prescription is know
ledge.”1 The A
gency for Healthcare Research and Quality (AHRQ) of the National Institutes of Health (NIH) echoes this view
and recommends that every patient incorporate education into the treatment
process. According to the AHRQ:
Finding out more about your condition is a good place to start. By