The Four Walls of My Freedom (20 page)

1
.    
See http://nobelprize.org/nobel_prizes/economics/laureates/1998/sen-autobio.html.

2
.    
Keynote speech, Second International Disability Conference, World Bank, 30 November–1 December 2004. See www.worldbank.org.

3
.    
Eva Feder Kittay,
Love's Labor: Essays on Women, Equality and Dependency
(New York and London: Routledge, 1998), p. 132.

4
.    
John Maynard Keynes,
The General Theory of Employment, Interest and Money
(New Delhi: Atlantic, 2006), p. 351.

5
.    
Written by Warren Nilsson for
PLAN
.

6
.    
See www.statcan.gc.ca/pub/82-625-x/2010002/article/11271-eng.htm.

7
.    
John Restakis, “Co-op Elder Care in Canada,” British Columbia Co-operative Association, May 2008. See www.coopscanada.coop.

8
.    
Caroline Davies, “Martin Amis in New Row Over Euthanasia Booths,” Guardian.co.uk, January 24, 2010. Copyright Guardian News & Media 2010.

9
.    
Shoshana Zuboff, “Our Health-Care System Needs a Bypass,”
Bloomberg Businessweek
, January 16, 2009. See www.businessweek.com.

10
.    
David A. Pailin,
A Gentle Touch: From a Theology of Handicap to a Theology of Human Being
(London: SPCK–The Society for Promoting Christian Knowledge, 1992), p. 103. Used by permission of SPCK.

11
.    
Ibid
. Pailin writes: “It is grounded not in what they (people with severe cognitive disabilities) can do or give, but in what they can be given. Worth is not a quality that belongs to a persona in herself or himself; it is a matter of a relationship with another person. …Worth is something that is bestowed by being loved, being wanted, being respected and being cherished. It is not a quality that is inherent in an object or a person: it is a quality that is given to an object or a person by another.”

12
.    
Hans Reinders,
Receiving the Gift of Friendship: Profound Disability, Theological Anthropology, and Ethics
(Grand Rapids, MI: Wm. B. Eerdmans, 2008), p. 162.

13
.    
Jeff McMahan,
The Ethics of Killing: Problems at the Margins of Life, Oxford Ethics Series
(Oxford: Oxford University Press, 2002).

14
.    
Eva Feder Kittay, “The Personal Is Philosophical Is Political: A Philosopher and Mother of a Cognitively Disabled Person Sends Notes from the Battlefield,”
Metaphilosophy
, 40.3–4 (2009): 621–22.

15
.    
Martha C. Nussbaum,
Frontiers of Justice: Disability, Nationality, Species Membership
(Cambridge, MA: The Belknap Press of Harvard University Press, 2006), pp. 77–78. Reprinted by permission of the publisher. Copyright © 2006 by President and Fellows of Harvard College.

16
.    
Ibid
.

17
.    
Ibid
., p. 187.

18
.    
Martha C. Nussbaum, “Equality, Dignity and Disability,”in
Perspectives on Equality: The Second Seamus Heaney Lectures
(Dublin: Liffey Press, 2005), p. 110.

19
.    
Theodore Zeldin,
An Intimate History of Humanity
(London: Vintage, 1998), p. 68. Reprinted by permission of the The Random House Group Ltd.

20
.    
Reinders,
Receiving the Gift of Friendship
, p. 136.

21
.    
Ibid
., p. 137.

22
.    
Emily Perl Kingsley's “Welcome to Holland” was written in 1987. Reprinted by permission of the author.

23
.    
Kittay,
Love's Labor
, p. 568.

24
.    
Ibid
., p. 110. Kittay has written extensively on her belief that any idea of “normal” as a yardstick for judging humanity will inevitably exclude people like her own daughter: “I believe that positing a norm of human functioning — any norm, you name it, where that norm is to serve as a basis for human dignity — will turn out to exclude certain people from the possibility of a truly human life, a life worthy of human dignity.”

25
.    
Lawrence Becker, “The Good of Agency,” in Americans with Disabilities: Exploring Implications of the Law for Individuals and Institutions, ed. Leslie Pickering Francis and Anita Silvers (New York: Routledge, 2000), pp. 54–63.

26
.    
“You'll Never Walk Alone” lyrics by Oscar Hammerstein II, from
Carousel
, music by Richard Rogers.

27
.    
Rosalyn Benjamin Darling, “Parental Entrepreneurship: A Consumerist Response to Professional Dominance,”
Journal of Social Issues
, 44.1 (1988): 150.

28
.    
Ibid
.

29
.    
Kittay,
Love's Labor
, p. 154.

30
.    
Andrew Jacobs, “Pennsylvania Couple Accused of Abandoning Disabled Son,”
New York Times
, December 29, 1999. See www.nytimes.com.

31
.    
André Morin, “Between a Rock and a Hard Place—Final Report,” Ombudsman Ontario, May 2005.
See www.ombudsman.on.ca.

32
.    
Shelley Page, “Whose Child Is This?”
Ottawa
Citizen
, February 7, 2009, p. B1. Used with permission.

33
.    
Ibid
.

34
.    
Eva Feder Kittay, “When Caring Is Just and Justice Is Caring: Justice and Mental Retardation,”
Public Culture
, 13.3 (2001): 565.

35
.    
Kittay,
Love's Labor
, p. 132.

36
.    
“Putting People First,”
UK
Government, Department of Health, February 26, 2009. See www.cpa.org.uk.

37
.    
“Putting People First — Without Putting Carers Second,” Princess Royal Trust for Carers and Crossroads Caring for Carers, February 27, 2009. See http://static.carers.org.

38
.    
Arlene Kaplan Daniels, “Invisible Work,”
Social Problems
, 34:5 (December 1987): 403.

39
.    
Ibid
., p. 409. Kaplan Daniels elaborates: “The aspect of these activities most difficult for everyone to conceptualize as work involves the warm and caring aspects of the construction and maintenance of interpersonal relations. In the commonsense view, these activities occur spontaneously. They are informal and unregulated — outside of bureaucratic rules and obligations. These activities are what Arlie Hochschild (1979) calls the positive aspects of “emotion work.” They involve the following behaviours: (1) attending carefully to how a setting affects others in it — through taking the role of the other and feeling some of the same feelings; (2) focusing attention through ruminating about the past and planning for the future; (3) assessing the reasonableness of preliminary judgments by checking over the behaviour of all respondents in an interaction — just as good hostesses do when they look for signs of how well people are enjoying a party, whether or not anyone feels ill at ease or left out; (4) creating a comfortable ambience through expressions of gaiety, warmth, sympathy, and cheerful, affectionate concern for or interest in another.”

40
.    
Kittay,
Love's Labor
, pp. 179–80.

41
.    
See Appendix A for a detailed breakdown of our index results.

42
.    
Canadian Institute of Wellbeing/Measuring What Matters, May 9, 2010. See www.ciw.ca.

43
.    
Institute of Canadian Citizenship (
ICC
), May 9, 2010. See www.icc-icc.ca.

44
.    
Cristina Odone, “What Women Want and How They Can Get It,”
Centre for Policy Studies
. Centre for Policy Studies, January 12, 2010. See www.cps.org.uk/ cps_catalog/what%20women%20want.pdf.

45
.    
Amartya Sen,
The Idea of Justice
(London: Penguin, 2009), p. 260.

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